Down Syndrome Extra 21

Analysis

Down Syndrome Extra 21 is a registered charity in England and Wales, based in Ongar. It was registered in December 2002, 24 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. It says it makes grants to individuals, makes grants to organisations and provides services.

In the financial year ending March 2025, Down Syndrome Extra 21 reported income of £18k and spending of £27k, spending 149% of what it took in. Across the 5 years on record, from March 2021 to March 2025, income fell from £19k to £18k (-7.4%), an average of -1.9% a year. The sharpest change came in the year to March 2024, when income dropped by 37%. Over the whole period it spent 109% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Down Syndrome Extra 21 sits at the 36th percentile: it is larger than about 36% of them. Against every charity in England and Wales with reported income it ranks in the 42nd percentile. Charities of a similar size with the same main cause include The Hydes Hospital Trust (£18k), International Cancer Research Partnership (£18k) and West Windsor Hub (£18k).

Data notes from the register: Spending has exceeded income in each of the last three reported years, so the charity has been drawing on reserves or other funds.