Ectodermal Dysplasia Society

Analysis

Ectodermal Dysplasia Society is a registered charity in England and Wales, based in Glos. It was registered in October 2001, 25 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending December 2025, Ectodermal Dysplasia Society reported income of £107k and spending of £115k, spending 107% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income grew from £34k to £107k (+214%), an average of +33% a year. The sharpest change came in the year to December 2022, when income rose by 110%. Over the whole period it spent 100% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Ectodermal Dysplasia Society sits at the 64th percentile: it is larger than about 64% of them. Against every charity in England and Wales with reported income it ranks in the 72nd percentile. Charities of a similar size with the same main cause include The Congolese Association of Merseyside (£107k), Health & Education South (£107k) and St Edmunds Trust (£107k).