The International Alliance of ALS / MND Associations

Analysis

The International Alliance of ALS / MND Associations is a registered charity in England and Wales, based in England. It was registered in February 2000, 26 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 03739783). It says it makes grants to organisations, provides advocacy/advice/information and acts as an umbrella or resource body.

In the financial year ending June 2025, The International Alliance of ALS / MND Associations reported income of £700k and spending of £737k, spending 105% of what it took in. Across the 5 years on record, from June 2021 to June 2025, income grew from £164k to £700k (+326%), an average of +44% a year. The sharpest change came in the year to June 2022, when income rose by 128%. Over the whole period it spent 105% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The International Alliance of ALS / MND Associations sits at the 87th percentile: it is larger than about 86% of them. Against every charity in England and Wales with reported income it ranks in the 92nd percentile. Charities of a similar size with the same main cause include Islamic Centre of England Limited (£700k), Brainwaves Research (£700k) and Ty Olwen Trust Fund (£699k).

In its latest detailed accounts, income came from charitable activities 95% and donations and legacies 4.2%. Gifts in wills alone brought in £29k. Charitable activities took 0.0% of spending and raising funds 100%. Reserves of £75k would cover about 1 months of spending at that rate.