The Neurofibromatosis Association

Analysis

The Neurofibromatosis Association is a registered charity in England and Wales, based in London. It was registered in January 2000, 26 years ago. Its declared purposes cover general charitable purposes, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 03798407). It says it provides human resources, provides services and provides advocacy/advice/information.

In the financial year ending October 2025, The Neurofibromatosis Association reported income of £555k and spending of £548k, spending 99% of its income. Across the 5 years on record, from October 2021 to October 2025, income grew from £397k to £555k (+40%), an average of +8.7% a year. The sharpest change came in the year to October 2022, when income rose by 29%. Over the whole period it spent 95% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Neurofibromatosis Association sits at the 84th percentile: it is larger than about 84% of them. Against every charity in England and Wales with reported income it ranks in the 90th percentile. Charities of a similar size with the same main cause include African Caribbean Care Group (£555k), Bob Champion Cancer Trust (£555k) and Wimbledon and District Synagogue (£555k).

In its latest detailed accounts, income came from trading 52%, donations and legacies 33%, charitable activities 9.7% and investments 5.2%. Gifts in wills alone brought in £121k. Charitable activities took 75% of spending and raising funds 24%. Reserves of £123k would cover about 3 months of spending at that rate. It employed 6 people.