Cystinosis Foundation of the UK
Analysis
Cystinosis Foundation of the UK is a registered charity in England and Wales, based in Birmingham. It was registered in March 1999, 27 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. It says it provides advocacy/advice/information, sponsors or undertakes research and other charitable activities.
In the financial year ending March 2025, Cystinosis Foundation of the UK reported income of £34k and spending of £19k, leaving 44% of income unspent that year. Across the 5 years on record, from March 2021 to March 2025, income grew from £20k to £34k (+70%), an average of +14% a year. The sharpest change came in the year to March 2023, when income rose by 111%. Over the whole period it spent 118% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Cystinosis Foundation of the UK sits at the 46th percentile: it is larger than about 46% of them. Against every charity in England and Wales with reported income it ranks in the 55th percentile. Charities of a similar size with the same main cause include Newbrough Town Hall (£34k), The Ruby Hunt Trust (£34k) and Marton Community Centre Group (£34k).
Data notes from the register: The latest annual return was received after its deadline.
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Newbrough Town Hall | Northumberland | £34k |
| The Ruby Hunt Trust | Lincolnshire | £34k |
| Marton Community Centre Group | Middlesbrough | £34k |
| Arcaid | Surrey | £34k |