Alstrom Syndrome UK
Analysis
Alstrom Syndrome UK is a registered charity in England and Wales, based in Devon. It was registered in August 1998, 28 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 03557191). It says it provides human resources, provides buildings/facilities/open space and provides services.
In the financial year ending March 2025, Alstrom Syndrome UK reported income of £379k and spending of £335k, spending 88% of its income. Across the 5 years on record, from March 2021 to March 2025, income grew from £375k to £379k (+1.2%), an average of +0.3% a year. The sharpest change came in the year to March 2023, when income rose by 24%. Over the whole period it spent 89% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Alstrom Syndrome UK sits at the 80th percentile: it is larger than about 80% of them. Against every charity in England and Wales with reported income it ranks in the 88th percentile. Charities of a similar size with the same main cause include British Society for Paediatric Endocrinology and Diabetes (£379k), Veterans with Dogs (£380k) and The Sherwood Forest Trust (£379k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| British Society for Paediatric Endocrinology and Diabetes | Bristol | £379k |
| Veterans with Dogs | Exeter | £380k |
| The Sherwood Forest Trust | Edwinstowe | £379k |
| The Community of St Mary the Virgin at Wantage | Wantage | £380k |