The Dystonia Society
Analysis
The Dystonia Society is a registered charity in England and Wales, based in London. It was registered in June 1997, 29 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 03309777). It says it makes grants to individuals, makes grants to organisations and provides services.
In the financial year ending March 2025, The Dystonia Society reported income of £422k and spending of £403k, spending 95% of its income. Across the 5 years on record, from March 2021 to March 2025, income grew from £422k to £422k (+0.1%), an average of +0.0% a year. The sharpest change came in the year to March 2024, when income rose by 150%. Over the whole period it spent 75% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Dystonia Society sits at the 81st percentile: it is larger than about 81% of them. Against every charity in England and Wales with reported income it ranks in the 88th percentile. Charities of a similar size with the same main cause include Henley YMCA (£422k), The Wyfold Charitable Trust (£422k) and Choices Islington (£422k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Henley YMCA | Henley-On-Thames | £422k |
| The Wyfold Charitable Trust | London | £422k |
| Choices Islington | London | £422k |
| The Hugs Foundation | Bodmin | £423k |