Stickler Syndrome UK

Analysis

Stickler Syndrome UK is a registered charity in England and Wales, based in Kent. It was registered in January 1997, 29 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. It says it provides advocacy/advice/information and other charitable activities.

In the financial year ending September 2025, Stickler Syndrome UK reported income of £43k and spending of £57k, spending 134% of what it took in. Across the 5 years on record, from September 2021 to September 2025, income grew from £5,738 to £43k (+645%), an average of +65% a year. The sharpest change came in the year to September 2024, when income rose by 290%. Over the whole period it spent 100% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Stickler Syndrome UK sits at the 50th percentile: it is larger than about 50% of them. Against every charity in England and Wales with reported income it ranks in the 58th percentile. Charities of a similar size with the same main cause include Bridgend Samaritans (£43k), Rotary District 1120 Charitable Trust (£43k) and Pepal Foundation (£43k).