Dancing Eye Syndrome Support Trust
Analysis
Dancing Eye Syndrome Support Trust is a registered charity in England and Wales, based in Nottingham. It was registered in January 1997, 29 years ago. Its declared purposes cover disability, which this site groups under disability. Legally it is a charitable trust. It says it provides advocacy/advice/information.
In the financial year ending August 2025, Dancing Eye Syndrome Support Trust reported income of £15k and spending of £28k, spending 182% of what it took in. Across the 5 years on record, from August 2021 to August 2025, income grew from £3,172 to £15k (+385%), an average of +48% a year. The sharpest change came in the year to August 2023, when income rose by 215%. Over the whole period it spent 165% of the income it received.
Among 12,871 England and Wales charities whose main cause is disability and that reported income, Dancing Eye Syndrome Support Trust sits at the 35th percentile: it is larger than about 35% of them. Against every charity in England and Wales with reported income it ranks in the 39th percentile. Charities of a similar size with the same main cause include Charity of Thomas Holroyd (£15k), Igbo Women Community (Iwc) Greater Manchester (£15k) and Catcote School Parents and Friends (£15k).
Data notes from the register: The latest annual return was received after its deadline. Spending has exceeded income in each of the last three reported years, so the charity has been drawing on reserves or other funds.
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Charity of Thomas Holroyd | Huddersfield | £15k |
| Igbo Women Community (Iwc) Greater Manchester | Manchester | £15k |
| Catcote School Parents and Friends | Cleveland | £15k |
| Guilsfield Old School Village Hall | Powys | £15k |