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Dancing Eye Syndrome Support Trust

Registered · see notesRegistered charity number 1060181NottinghamDisability
Income£15k2025-08-31
Spending£28ksame year
Spent / received165%5-year average
Size in its cause35th pctDisability
Registered1997Trust
Employees–latest return

Analysis

Dancing Eye Syndrome Support Trust is a registered charity in England and Wales, based in Nottingham. It was registered in January 1997, 29 years ago. Its declared purposes cover disability, which this site groups under disability. Legally it is a charitable trust. It says it provides advocacy/advice/information.

In the financial year ending August 2025, Dancing Eye Syndrome Support Trust reported income of £15k and spending of £28k, spending 182% of what it took in. Across the 5 years on record, from August 2021 to August 2025, income grew from £3,172 to £15k (+385%), an average of +48% a year. The sharpest change came in the year to August 2023, when income rose by 215%. Over the whole period it spent 165% of the income it received.

Among 12,871 England and Wales charities whose main cause is disability and that reported income, Dancing Eye Syndrome Support Trust sits at the 35th percentile: it is larger than about 35% of them. Against every charity in England and Wales with reported income it ranks in the 39th percentile. Charities of a similar size with the same main cause include Charity of Thomas Holroyd (£15k), Igbo Women Community (Iwc) Greater Manchester (£15k) and Catcote School Parents and Friends (£15k).

Data notes from the register: The latest annual return was received after its deadline. Spending has exceeded income in each of the last three reported years, so the charity has been drawing on reserves or other funds.

Income and spending

£0£6,996£14k£21k£28k2021 Income: £3,1722021 Spending: £2,31720212022 Income: £3,1512022 Spending: £8,78520222023 Income: £9,9162023 Spending: £14,78920232024 Income: £10,1612024 Spending: £15,05920242025 Income: £15,3982025 Spending: £27,9832025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.

Similar-sized charities, same cause

CharityLocationIncome
Charity of Thomas HolroydHuddersfield£15k
Igbo Women Community (Iwc) Greater ManchesterManchester£15k
Catcote School Parents and FriendsCleveland£15k
Guilsfield Old School Village HallPowys£15k