Primary Ciliary Dyskinesia Support UK
Analysis
Primary Ciliary Dyskinesia Support UK is a registered charity in England and Wales, based in Berkshire. It was registered in October 1995, 31 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. It says it makes grants to individuals, makes grants to organisations and provides services.
In the financial year ending December 2025, Primary Ciliary Dyskinesia Support UK reported income of £16k and spending of £11k, leaving 27% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income fell from £55k to £16k (-71%), an average of -27% a year. The sharpest change came in the year to December 2024, when income rose by 224%. Over the whole period it spent 75% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Primary Ciliary Dyskinesia Support UK sits at the 34th percentile: it is larger than about 34% of them. Against every charity in England and Wales with reported income it ranks in the 40th percentile. Charities of a similar size with the same main cause include The Pentney Charity (£16k), The Hilton International Development Trust (£16k) and Learn Org UK Limited (£16k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| The Pentney Charity | Norfolk | £16k |
| The Hilton International Development Trust | Peterborough | £16k |
| Learn Org UK Limited | Dewsbury | £16k |
| Said (Shelter and Medic Aid) | London | £16k |