The Tuberous Sclerosis Association

Analysis

The Tuberous Sclerosis Association is a registered charity in England and Wales, based in Exeter. It was registered in September 1994, 32 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 02900107). It says it makes grants to individuals, makes grants to organisations and provides human resources.

In the financial year ending December 2025, The Tuberous Sclerosis Association reported income of £478k and spending of £539k, spending 113% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income grew from £443k to £478k (+7.7%), an average of +1.9% a year. The sharpest change came in the year to December 2024, when income rose by 82%. Over the whole period it spent 98% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Tuberous Sclerosis Association sits at the 83rd percentile: it is larger than about 83% of them. Against every charity in England and Wales with reported income it ranks in the 89th percentile. Charities of a similar size with the same main cause include The Society of All Saints Sisters of the Poor (Commonly Called Society of All Saints) (£478k), Epping Forest Community Transport (£478k) and Wansbeck Centre for Voluntary Service (£478k).