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Wolf Hirschhorn Syndrome Trust

RegisteredRegistered charity number 1038219ChesterDisability
Income£16k2025-05-31
Spending£843same year
Spent / received85%5-year average
Size in its cause35th pctDisability
Registered1994Trust
Employees–latest return

Analysis

Wolf Hirschhorn Syndrome Trust is a registered charity in England and Wales, based in Chester. It was registered in May 1994, 32 years ago. Its declared purposes cover disability, which this site groups under disability. Legally it is a charitable trust. It says it makes grants to individuals, makes grants to organisations and provides other finance.

In the financial year ending May 2025, Wolf Hirschhorn Syndrome Trust reported income of £16k and spending of £843, leaving 95% of income unspent that year. Across the 5 years on record, from May 2021 to May 2025, income grew from £6,505 to £16k (+141%), an average of +25% a year. The sharpest change came in the year to May 2024, when income rose by 103%. Over the whole period it spent 85% of the income it received.

Among 12,871 England and Wales charities whose main cause is disability and that reported income, Wolf Hirschhorn Syndrome Trust sits at the 35th percentile: it is larger than about 35% of them. Against every charity in England and Wales with reported income it ranks in the 40th percentile. Charities of a similar size with the same main cause include North London Women Group (£16k), Stella Hancock Driving Group Riding for the Disabled Association Incorporating Carriage Driving (£16k) and Christ Elected Church (£16k).

Income and spending

£0£6,602£13k£20k£26k2021 Income: £6,5052021 Spending: £3,54220212022 Income: £11,6852022 Spending: £17,51120222023 Income: £8,6962023 Spending: £2,91520232024 Income: £17,6802024 Spending: £26,40820242025 Income: £15,7062025 Spending: £8432025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.

Similar-sized charities, same cause

CharityLocationIncome
North London Women GroupLondon£16k
Stella Hancock Driving Group Riding for the Disabled Association Incorporating Carriage DrivingGodalming£16k
Christ Elected ChurchBirmingham£16k
Truman Enterprise Narrowboat TrustWest Midlands£16k