The Society for the Study of Inborn Errors of Metabolism
Analysis
The Society for the Study of Inborn Errors of Metabolism is a registered charity in England and Wales, based in London. It was registered in April 1992, 34 years ago. Its declared purposes cover education/training and the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 02567711). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.
In the financial year ending December 2025, The Society for the Study of Inborn Errors of Metabolism reported income of £502k and spending of £564k, spending 112% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income fell from £509k to £502k (-1.4%), an average of -0.3% a year. The sharpest change came in the year to December 2022, when income rose by 370%. Over the whole period it spent 87% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Society for the Study of Inborn Errors of Metabolism sits at the 83rd percentile: it is larger than about 83% of them. Against every charity in England and Wales with reported income it ranks in the 90th percentile. Charities of a similar size with the same main cause include Melanoma Focus (£502k), Iyimv (£502k) and Bury Involvement Group in Mental Health (£501k).
In its latest detailed accounts, income came from charitable activities 95% and investments 5.0%. Charitable activities took 95% of spending and raising funds 0.0%. Grants to other organisations totalled £70k. Reserves of £3.0m would cover about 61 months of spending at that rate. It employed 2 people.
Income and spending
Where the income comes from
- Charitable activities 95%
- Investments 5.0%
In the charity's own words
The aim of SSIEM is to foster the study of inherited metabolic disorders and related topics by arranging scientific meetings, publications and training. SSIEM is willing to spread interest and study in inborn errors around the world by selectively supporting membership and attendance at conferences from areas where financial resources are more limited.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Melanoma Focus | Cambridge | £502k |
| Iyimv | London | £502k |
| Bury Involvement Group in Mental Health | Bury | £501k |
| Raphael Centre | Bristol | £503k |