Haemochromatosis UK
Analysis
Haemochromatosis UK is a registered charity in England and Wales, based in Lincolnshire. It was registered in December 1990, 36 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 02541361). It says it makes grants to organisations, provides other finance and provides services.
In the financial year ending December 2025, Haemochromatosis UK reported income of £565k and spending of £658k, spending 116% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income grew from £366k to £565k (+54%), an average of +12% a year. The sharpest change came in the year to December 2024, when income rose by 36%. Over the whole period it spent 104% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Haemochromatosis UK sits at the 85th percentile: it is larger than about 85% of them. Against every charity in England and Wales with reported income it ranks in the 91st percentile. Charities of a similar size with the same main cause include The Plastow Family Charitable Trust (£565k), The Patients Association (£565k) and East Sussex Wras Ltd (£565k).
In its latest detailed accounts, income came from charitable activities 81% and donations and legacies 18%. Gifts in wills alone brought in £7,930. Charitable activities took 100% of spending and raising funds 0.0%. Reserves of £125k would cover about 2 months of spending at that rate. It employed 7 people.
Income and spending
Where the income comes from
- Donations 17%
- Legacies 1.4%
- Charitable activities 81%
- Investments 0.9%
In the charity's own words
To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| The Plastow Family Charitable Trust | Bristol | £565k |
| The Patients Association | Middlesex | £565k |
| East Sussex Wras Ltd | Pevensey | £565k |
| Open Hands Trust (Leicester) | Leicester | £566k |