Alagille Syndrome Alliance

Analysis

Alagille Syndrome Alliance is a registered charity in United States, based in Washington, DC. It received its IRS tax-exemption ruling in October 1998, 28 years ago. Its declared purposes cover medical research, which this site groups under health and saving lives. The IRS classifies it as a publicly supported organisation (donations from the general public) under section 501(c)(3), and contributions to it are listed as tax-deductible.

In the financial year ending December 2023, Alagille Syndrome Alliance reported income of $572k and spending of $540k, spending 94% of its income. Across the 6 years on record, from December 2018 to December 2023, income grew from $163k to $572k (+250%), an average of +28% a year. The sharpest change came in the year to December 2019, when income rose by 111%. Over the whole period it spent 91% of the income it received.

Among 40,470 United States charities whose main cause is health and saving lives and that reported income, Alagille Syndrome Alliance sits at the 57th percentile: it is larger than about 57% of them. Against every charity in United States with reported income it ranks in the 72nd percentile, and in the 45th percentile within DC. Charities of a similar size with the same main cause include Malecare Inc ($572k), Healing Heroes Ministries ($572k) and A Mothers Touch Inc ($572k).

On its Form 990 for the period ending December 2023, revenue came from contributions and grants 97% and program service revenue 0.1% of the total. Other salaries and wages came to $216k. At year end it held assets of $502k against liabilities of $2,780, net assets of $499k. It reported 2 employees.