The Ehlers-Danlos Society

Analysis

The Ehlers-Danlos Society is a registered charity in United States, based in New York, NY. It received its IRS tax-exemption ruling in October 1988, 38 years ago. Its declared purposes cover health care, which this site groups under health and saving lives. The IRS classifies it as a publicly supported organisation (donations from the general public) under section 501(c)(3), and contributions to it are listed as tax-deductible.

In the financial year ending December 2023, The Ehlers-Danlos Society reported income of $9.8m and spending of $5.2m, leaving 47% of income unspent that year. Across the 5 years on record, from December 2019 to December 2023, income grew from $3.2m to $9.8m (+203%), an average of +32% a year. The sharpest change came in the year to December 2023, when income rose by 116%. Over the whole period it spent 71% of the income it received.

Among 40,470 United States charities whose main cause is health and saving lives and that reported income, The Ehlers-Danlos Society sits at the 84th percentile: it is larger than about 84% of them. Against every charity in United States with reported income it ranks in the 95th percentile, and in the 93rd percentile within NY. Charities of a similar size with the same main cause include Northwest Iowa Mental Health Center ($9.8m), Greater Flint Health Coalition Inc ($9.8m) and National Health Law Program Inc ($9.8m).

On its Form 990 for the period ending December 2023, revenue came from contributions and grants 96% and program service revenue 4.0% of the total. Compensation of current officers, directors and key employees was $243k (4.7% of expenses). Other salaries and wages came to $968k. At year end it held assets of $8.7m against liabilities of $1.5m, net assets of $7.2m. It reported 16 employees.