Cystinosis Research Foundation

Analysis

Cystinosis Research Foundation is a registered charity in United States, based in Newport Beach, CA. It received its IRS tax-exemption ruling in July 2003, 23 years ago. Its declared purposes cover medical research, which this site groups under health and saving lives. The IRS classifies it as a publicly supported organisation (donations from the general public) under section 501(c)(3), and contributions to it are listed as tax-deductible.

In the financial year ending June 2024, Cystinosis Research Foundation reported income of $3.2m and spending of $4.2m, spending 130% of what it took in. Across the 6 years on record, from June 2019 to June 2024, income fell from $5.4m to $3.2m (-41%), an average of -10% a year. The sharpest change came in the year to June 2020, when income dropped by 20%. Over the whole period it spent 97% of the income it received.

Among 40,470 United States charities whose main cause is health and saving lives and that reported income, Cystinosis Research Foundation sits at the 76th percentile: it is larger than about 76% of them. Against every charity in United States with reported income it ranks in the 89th percentile, and in the 90th percentile within CA. Charities of a similar size with the same main cause include Iroquois Mental Health Center ($3.2m), West Sound Treatment Center Inc ($3.2m) and Family Trust ($3.2m).

On its Form 990 for the period ending June 2024, revenue came from contributions and grants 86% of the total. Other salaries and wages came to $63k. At year end it held assets of $10.4m against liabilities of $2.7m, net assets of $7.7m. It reported 1 employees.