Everylife Foundation for Rare Diseases

Analysis

Everylife Foundation for Rare Diseases is a registered charity in United States, based in Washington, DC. It received its IRS tax-exemption ruling in October 2009, 17 years ago. Its declared purposes cover diseases, disorders and medical disciplines, which this site groups under health and saving lives. The IRS classifies it as a publicly supported organisation (donations from the general public) under section 501(c)(3), and contributions to it are listed as tax-deductible.

In the financial year ending December 2023, Everylife Foundation for Rare Diseases reported income of $6.8m and spending of $6.1m, spending 89% of its income. Across the 5 years on record, from December 2019 to December 2023, income grew from $4.8m to $6.8m (+41%), an average of +9.0% a year. The sharpest change came in the year to December 2021, when income rose by 24%. Over the whole period it spent 89% of the income it received.

Among 40,470 United States charities whose main cause is health and saving lives and that reported income, Everylife Foundation for Rare Diseases sits at the 81st percentile: it is larger than about 81% of them. Against every charity in United States with reported income it ranks in the 94th percentile, and in the 83rd percentile within DC. Charities of a similar size with the same main cause include Beacon Christian Community Health Center Inc ($6.8m), Brown County Oral Healthpartnership Inc ($6.8m) and St Lukes Health Care Foundation ($6.8m).

On its Form 990 for the period ending December 2023, revenue came from contributions and grants 98% of the total. Compensation of current officers, directors and key employees was $296k (4.9% of expenses). Other salaries and wages came to $2.1m. At year end it held assets of $5.8m against liabilities of $1.8m, net assets of $4.0m. It reported 28 employees.