Myotonic Dystrophy Foundation

Analysis

Myotonic Dystrophy Foundation is a registered charity in United States, based in Oakland, CA. It received its IRS tax-exemption ruling in March 2007, 19 years ago. Its declared purposes cover diseases, disorders and medical disciplines, which this site groups under health and saving lives. The IRS classifies it as a publicly supported organisation (donations from the general public) under section 501(c)(3), and contributions to it are listed as tax-deductible.

In the financial year ending December 2023, Myotonic Dystrophy Foundation reported income of $2.4m and spending of $3.8m, spending 155% of what it took in. Across the 5 years on record, from December 2019 to December 2023, income grew from $2.3m to $2.4m (+7.8%), an average of +1.9% a year. The sharpest change came in the year to December 2021, when income rose by 22%. Over the whole period it spent 94% of the income it received.

Among 40,470 United States charities whose main cause is health and saving lives and that reported income, Myotonic Dystrophy Foundation sits at the 73rd percentile: it is larger than about 73% of them. Against every charity in United States with reported income it ranks in the 88th percentile, and in the 88th percentile within CA. Charities of a similar size with the same main cause include Mental Health America of Greater Houston Inc ($2.4m), Frederick Health Inc ($2.4m) and Candlelighters for Childhood Cancer ($2.4m).

On its Form 990 for the period ending December 2023, revenue came from contributions and grants 95% and program service revenue 3.4% of the total. Compensation of current officers, directors and key employees was $264k (7.0% of expenses). Other salaries and wages came to $591k. At year end it held assets of $5.5m against liabilities of $1.5m, net assets of $4.0m. It reported 10 employees.