Amyotrophic Lateral Sclerosis Assn

Analysis

Amyotrophic Lateral Sclerosis Assn is a registered charity in United States, based in Arlington, VA. It received its IRS tax-exemption ruling in July 1990, 36 years ago. Its declared purposes cover diseases, disorders and medical disciplines, which this site groups under health and saving lives. The IRS classifies it as a publicly supported organisation (donations from the general public) under section 501(c)(3), and contributions to it are listed as tax-deductible.

In the financial year ending January 2024, Amyotrophic Lateral Sclerosis Assn reported income of $126.5m and spending of $98.8m, leaving 22% of income unspent that year. Across the 5 years on record, from January 2020 to January 2024, income grew from $37.0m to $126.5m (+241%), an average of +36% a year. The sharpest change came in the year to January 2024, when income rose by 128%. Over the whole period it spent 105% of the income it received.

Among 40,470 United States charities whose main cause is health and saving lives and that reported income, Amyotrophic Lateral Sclerosis Assn sits at the 96th percentile: it is larger than about 96% of them. Against every charity in United States with reported income it ranks in the 99th percentile, and in the 99th percentile within VA. Charities of a similar size with the same main cause include Harnett Health System Inc ($126.3m), Holzer Health System ($126.8m) and Corewell Health ($126.3m).

On its Form 990 for the period ending January 2024, revenue came from contributions and grants 98% of the total. Compensation of current officers, directors and key employees was $2.1m (2.2% of expenses). Other salaries and wages came to $37.4m. It paid $724k in professional fundraising fees. At year end it held assets of $127.9m against liabilities of $29.8m, net assets of $98.1m. It reported 598 employees.